Help Baby Chloe! FeaturedWritten by Carvin Goldstone
AFTER suffering a stroke, and then contracting TB meningitis, a once perfectly healthy Durban two-year-old is now blind and faces the future as a quadriplegic.
To help the family raise funds for the medical expenses, an event has been planned in Durban for 27 August 2010. Please join the Baby Chloe Facebook Group for more info.
She has been in King Edward VIII Hospital since December and her parents are desperate to take her home but cannot because they cannot afford to pay for the care she needs. Doctors have been unable to explain to Newlands East parents Roland and Kara Stanley how their daughter, Chloe, with no history of medical problems, suddenly suffered a stroke in October last year.
“I just thought she was sleepy, but when I arrived at work and kissed her goodbye she had spit on the side of her mouth and I noticed her face was slightly skewed. “When I saw this I was shocked and knew it had to be stroke-related because my father had suffered a stroke and I knew the symptoms. “Roland and I immediately took her to the paediatrician at eThekwini Heart Hospital. He told me that because I didn’t have medical aid it would be too expensive and that I should rush to King Edward VIII.” She said the doctor contacted his colleague at King Edward, but because of the slow admission process at the government hospital, the doctor had left by the time they arrived. However, he had told hospital staff that Chloe would be arriving. “I took her through to the paediatric acute section and they saw to her and told me that, according to her CAT scan she had had an infarct, which caused a left haemorrhage.” She said her daughter could not walk straight and would fall to her right side. However, Stanley said her daughter made a full recovery and returned to pre-school, although she had to have regular check-ups. But in December, Chloe fell ill again, this time with a fever “that wouldn’t go away”.
Stanley said their family doctor in Newlands East treated her for flu, but after the third trip to the doctor she was referred back to King Edward. “At King Edward they were still unable to diagnose what was wrong with her. “It was finally her check-up date and I then took her back to her doctor at the hospital. She immediately could see that there was something seriously wrong with Chloe. “She sent me to the paediatric acute section. While they were testing her she started having a fit which carried on for about two hours. “It was the most terrifying thing I have ever seen. I felt so helpless because there was nothing I could do except pray and cry. I kept asking God, ‘Why Chloe?’ Couldn’t He just give me her pain and suffering?”
Stanley said Chloe was diagnosed by Dr Vasantha Naidoo with hydrocephalus (also known as water on the brain). He contacted a surgeon at Inkosi Albert Luthuli Hospital to arrange for a shunt to be inserted in her head to drain the fluid.
“After about two to three days the shunt was working, but she had contracted TB meningitis. She was still having high temperature spikes which the doctors attributed to the meningitis.”
Doctors also told Stanley that Chloe had multiple infarcts (tissue death from lack of oxygen) on her brain, which Stanley said explained why her daughter could no longer talk, eat or respond. Naidoo said it would be very difficult for the family to take their child home. “She has a severe disability. She is a quadriplegic because she has suffered a stroke on both sides of the body and is unable to swallow. “She also has severe epilepsy and is taking many drugs. She will need all the support she can get,” said Naidoo. Stanley said she had to resign from her job to care for her daughter. She also had two other children to care for. Her husband was unemployed. Doctors have told them that Chloe needs to go for regular physiotherapy, occupational and speech therapy at an estimated cost of R4 500 a month – in addition to all the medication she will need. She will also need to be fed through a tube because she cannot swallow and will need a special “buggy” with a custom- made chair and special mattresses to support her body, which has been deformed by the strokes.
By Carvin Goldstone.
Please we request from assistance be financially, your expertise and your time.
Tarryn Gater : 0765086764
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